Last year, I was diagnosed with Elhers-Danlos Syndrome (EDS). EDS effects my body’s college production and leaves all of my connective tissues – mainly my joints, feeling weak and hypermobile. I’m constantly in pain, and yet I get accused of being whiney or dramatic.
I have had joint pains my entire life. As a kid, I was told that it was just growing pains. I learned to understand that being in pain was just my normal, and I didn’t know for a long time that it wasn’t normal for everyone. I have already undergone 4 surgeries and have at least 1 more surgery pending.
Most recently, after 6 weeks of intense headaches and random vision disturbances, I went to the eye doctor for a routine eye exam and he sent me straight to the ER. My optic nerves were swollen and bleeding. The last few days have been a whirlwind and I received a diagnosis of pseudotumor cerebri (PTC). With PTC, my brain is essentially reacting like I have a tumor, but there is no tumor. I’ve had two ER visits in the last 48 hours and have lost part of vision (hopefully only temporary).